MultipleSclerosis Rx & Dr options

MultipleSclerosis Rx & Dr options

UGH!!! My RRMS is getting progressively worse.

It’s really frustrating and even more so since it appears to have started to significantly and quickly decline once I began taking the other prescriptions for pain, anxiety, and depression (which makes no sense to me since I’m not depressed). So, I’m on Gabapentin for the pain and the constant tingling, Alprazolam for anxiety (I have a bit of agoraphobia), and Sertraline for depression.

Now, my (current) neurologist, I’m getting another opinion in November, wants an answer when I see him in a couple of weeks as to which medication I have chosen. He gave me three choices of oral medication, Aubagio, Gilenya, and Tecfidera. I read up on each of these. In fact, I spent HOURS reading, researching, and looking up testimonials and reviews from unbiased sites. But even just the “don’t take this if you have…” section tells me they won’t work.

Dr. H (not giving his full name for anonymity) has been pressing me to take the Tecfidera for a couple of years now. This particular drug prescription costs $70,000 USD a year!!!! How can I possibly justify taking a drug that costs more than most people make in a year and four times the amount I was making at the job I lost. This leads me to have to look up the injectable options, which probably won’t cost any less. This is also frustrating because I have continued to ask him for more natural remedies due to the affects of the side effects of the prescriptions.

My reason for looking for another option for a neurologist is based on my not having faith in the type of care Dr H has been giving me, or in how he keeps my records. I recently received a copy of my record for a lawyer to look into regarding appealing a decision bout receiving some benefits as I currently only have my child support and Herbalife, and it was incomplete with regard to complaints when I saw him along with medication lists. I also began to wonder some time ago why he hadn’t even suggested physical or occupational therapy once he saw I was getting worse.

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In addition, when delivering the forms needed by the attorney to Dr H’s office, while it was mentioned they were needed within two weeks, it instead took 1-1/2 months for him to properly and completely fill the paperwork out, which was as a result of many phone calls and visits to try to get it all prioritized.I’m thankful the application for my handicap placard was finally completed and sent in to the RMV last week.

sleepingAnyhow, the past few months have been very trying with regard to my health. Some days I wake up with my youngest to see him off to school and am okay for the remainder of the day and can then sleep a full night. Then there’s other nights. Those nights I can’t get to sleep until the sun has come up. Then, once everyone has left for the day, my body will finally fall asleep, but only for a few hours. Then there are also those same nights where I don’t get to sleep at all until mid afternoon, sleep for a few hours, wake up again for an hour or so, and then finally sleep until I awake at a normal time.

I don’t know if the sleeping issues are as a result of Dr H upping the dose on my gabapentin from 900mg/day to now 1800mg/day, and yet I’m still in pain as well. I have been extraordinarily consistent with my workouts again…because let’s face it, I went up to Vermont with good intentions of continuing with my workouts, but instead did a single hike the entire time I was up there. Then, of course, because I had gotten out of my routine, I had become lazy and just stopped.

So morning workouts resumed a few weeks back, and with the exception of the nights I didn’t sleep, I would make up for it that next evening, which would sometimes put me at two workouts a night, knowing if I didn’t, I would get off the routine, get lost from the habit, and get back to not feeling well.

I hope that you’re having an amazing week!

Be Blessed!

~ J

❤ ❤ ❤

 

 

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Be Mature: Week 1

This week’s content is very minimal. It’s just a matter of reading the foreword and the author’s note. 

The Big Idea: An Introduction to Be Mature

I will through in my main draw and a couple of the author’s quotes that spoke to me. Remember, each person can pull something different from the same thing, so it would be beneficial to read for yourself.

I love how Ken Baugh was so descriptive when he was comparing God and His work on us to that of a construction worker. It really makes God so He’s more reachable to us, and allows us to be more understanding in how the different events in our lives, how we respond to them, all are part of our process to becoming that who He has in mind for us when we were created.

“The spiritually maturing person takes responsibility to read and follow these commands themselves…you need to take responsibility for your own spiritual growth.” p.12

“Drink deeply, my friend, of the truths of God’s Word, for in them you will find Jesus Christ, and there is freedom, peace, assurance, and joy.” p.13

Ken Baugh is the Pastor of Coast Hills Community Church over in Aliso Viejo, California

A Word From The Author

Pastor Wiersbe was exceptionally brief in his word, but it doesn’t make it any less powerful. He speaks of the need for Christians to grow up. He states this reason is why the Epistle of James is so important for each of us on our walks. To help us not only grow in our spiritual maturity, but to grow in the understanding as well.

Next week, Week 2, we will discuss  Chapter 1: Time to Grow Up (James 1:1)

Until then, Be Blessed!

~ J

❤ ❤ ❤

Book One : Intro and Syllabus

Be Mature: Growing Up In Christ by Warren W. Wiersbe is the first book I’ve chosen to begin my review / blog book club because it truly is a wonderful book.

I believe it is necessary to always encourage one another and help one another to increase our spiritual maturity. This book is based off the teachings of James and how we are able to apply them to our everyday lives.

This book has a foreward written by Ken Baugh, a word from the author, followed by  13 chapters. The average chapter is between 11-15 pages in length, but go over in detail solid key points which should be pulled from the chapter and allow understanding in how to apply them in daily modern living. Because of this, I have decided to do one chapter per week, allowing this review to be broken down over 15 weeks. This is including both the introduction and auto-biography to begin with and closing out with final thoughts and what was grasped most from the book.

Be Mature: Growing Up In Christ

Week 1: Introduction and word from Pastor Wiersbe

He is patient in testing…

Week 2: Chapter 1: Time to Grow Up (James 1:1)

Week 3: Chapter 2: Turning Trials into Triumphs (James 1:2-12)

Week 4: Chapter 3: How to Hndle Temptation (James 1:13-18)

Week 5: Chapter 4: Quit Kidding Yourself (James 1:19-27)

He pratices the truth…

Week 6: Chapter 5: Rich Man, Poor Man (James 2:1-13)

Week 7: Chapter 6: False Faith (James 2:14-26)

He has power over his tongue…

Week 8: Chapter 7: The World’s Smallest but Largest Troublemaker (James 3:1-12)

Week 9: Chapter 8: Where to Get Wisdom (James 3:13-18)

He is a  peacemaker, not troublemaker…

Week 10: Chapter 9: How to End Wars (James 4:1-12)

Week 11: Chapter 10: Plan Ahead (James 4:13-17)

He is prayerful in troubles…

Week 12: Chapter 11: Money Talks (James 5:1-6)

Week 13: Chapter 12: The Power of Patience (James 5:7-12)

Week 14: Chapter 13: Let Us Pray (James 5:13-20)

Finishing Up

Week 15: Closing thoughts, what was biggest grab from the book.

There will then be a two week break to plan out the syllabus for the next book.

Until then, Be Blessed!

~ J

❤ ❤ ❤

 

 

Sunday’s Sermons from NDC

I have been attending New Day Church, currently being held at the Naismith Memorial Basketball Hall of Fame in Springfield, MA, since 2011. I love this community. There’s a bit of everyone there and it’s a casual atmosphere, which is awesome because I have tattoo’s and didn’t have a large wardrobe with “Sunday Best”. There motto is “Serious Worship, Casual Dress” and they have multiple services on Sunday’s, which is always awesome for those early risers and not so early risers.

In the past couple of years, they have even put the best of the 3 services for that week online, along with the sermon notes, in both video and podcast format. We have an app which has so many different options in addition to watching or listening to the sermons on your smart phone. http://www.NewDayChurch.cc/sermons is where you can get started at watching or listening to our weekly sermons.

This page will go over my thoughts on the sermon, how to apply the teaching’s to my daily life and walk with my Lord, any parting thoughts, and I will also give the direct link to that week’s sermon.

I do welcome you to take a look at my church’s website, or if you’re in Western Mass or NW Connecticut, please accept our open invitation to join one of our services each Sunday. And if you have children, we have age appropriate classrooms from newborns up to tweens. We also have small groups which just began sign-up’s this past Sunday. Check us out on our website or find us on Facebook!

Until then, be blessed!

~ J

❤ ❤ ❤

“You Asked For It” Series Week 1

To begin, let me let you know about my home church, New Day Church. We are currently a portable church renting facilities at the Naismith Memorial Basketball Hall of Fame located in Springfield, Mass. We have a lead Pastor, Mike Sorcinelli, an Associate Pastor, Andrew Charko, as well as other people who are devoting their lives to Christ within the church. We have a live worship team, production team (which I lovingly refer to as the AV club of the church), ministry team, and family and children ministry whose director is Tracey Jarvis. The family and children ministry allows for infants up to tweens the opportunity to take in God’s word in practical and age-appropriate classrooms.

Now, on to this week’s series…

The topic of this particular series is based on the top questions received by my church’s pastoral staff earlier in the spring. Each week in the series goes over one of the most popular questions received.

This week (September 4, 2016) we went over “How to Move from Doubt to Faith”. This is a fantastic question and one many either are too afraid to ask, or just think it’s not possible. My friends, Let me tell you, little is further from the truth!

This particular sermon was wonderful because every so often, even as a seasoned Christian, I can sometimes feel doubtful about situations. Even just having that small lack of faith leaves enough of an opening for Satan to get into our heads and allows him the permission to begin feeding on our feelings of insecurity. In the past, each time I have let my guard down, even just  a little, I can just hear him telling me all kinds of lies, the type of lies only he could understand exactly which of my faults or feelings of insecurity he could use against me to make me feel useless and then have such a feeling a hopelessness.

But I don’t have to believe his lies. In fact, I don’t even have to allow them. It is imperative for to become more solid in our understanding of the scriptures of God’s truth, and then, each time satan tries to convince how we’re anything less than God’s children, whom He loves fully and unconditionally, we can throw God’s Truth and Promises back at the devil to let him know exactly how much we don’t believe him. That as long as we’re familiar with His Truth found within His word, we can replace any unbiblical expectations and deeds behind us.

Fix our eyes on Jesus and personally investigate all that is found within the Bible and what we’re told that goes against it. By doing this, it allows ground for us to stand on. By further researching, gaining godly and Biblical counsel, and having quiet prayer time with Him daily, it allows us to grow stronger in our faith. And when we’re doing all of this, it is much easier, over time, to look at ourselves through His eyes. We will learn how we are all created in His image, and therefore are nothing but positives.

I have been working on putting this into my practical daily life by beginning my morning by feasting on the Lord’s truth followed by other devotions, prayer with thanks giving, and reminding myself throughout the day how sneaky satan is. Sneaky and slithery just as the snake he was in the Garden of Eden. When times become hard, I reach out to Him for strength. I write down my prayers, and then when they’re answered, whether in the way I would have liked or not, I go back to that prayer, write down how it was answered, and the date it was answered. Sometimes it isn’t wholly answered at once, but in steps, and that’s okay, too.

We all need to start somewhere, and steps, whether small or large, will help us to get where we want to go. For everlasting life, it is imperative, regardless of the size of steps we take, to have our blinders on and keep on the path to Him. The steps could start as small as reading your Bible for even 10 minutes a day. If you want more, and to be able to read the Bible in a year, it is often suggested to read 4 chapters in a day. Personally I have a 365 day Bible reading plan that I use on my phone’s YouVersion Bible App.

I would like to personally invite you to church. Our services are held on Sunday’s, as I said above, at the Basketball Hall of Fame in Springfield, Mass. The service times are 9, 10:30, and 12 noon. There is ample parking and we have plenty of seating. Our first two service times are held both in the theater downstairs (across from the box office), and upstairs in the loft, tweens Spark program is held across the hall in the conference room during second service. We have children services for all 3 times, but tween services are only during the 10:30am service time.

To watch or listen to this week’s sermon, and to print off the notes which come for each sermon, you can get them here.

To take a look at the Bible app I use, which can be downloaded as an app on your phone or tablet, or can be viewed right on the website. They also have an app for the kids!

Thank you for reading and watching/listening. I hope you gained as much from the service as I have. Also, please note, I did not go into my full notes from the sermon, because I would like each of you to gather your own thoughts. ❤

Until next time. Be Blessed!

~ J

❤ ❤ ❤

Choices

I have this problem which I’ve been fighting for years. I have this bad habit of putting on a mask with a smile, not so much to prevent others from seeing my emotions, how I’m feeling, protecting myself, or any of the other more common reasons. I do it because I really don’t want for others to worry about me.

I’ve been so strong for so long, I often feel if I let another in to know how or what I’m feeling, I would be unnecessarily burdening them with issues they don’t need on their plates as well. It is an unfortunate, yet obvious, double bladed knife as it leaves me in a position of feeling completely alone in any trials or struggles I’m facing.

I know I’m not alone because I always have God, but there are times when I’d love to ask for prayer, but don’t want others to worry…even though I know the more prayers going up by honest to goodness prayer warriors would be awesome.

So that’s a face, a choice, I consciously use daily. With my family, friends, when I was still employed, most of my coworkers. 

And I have realized lately how that is an act of omission, which, in turn, is a lie. I do my best to be as honest as humanly possible, but to realize how much I have been dishonest has a hold on my heart which only He can remove.

It is a choice to awaken each day with a positive and prayerful outlook on the day, or with a negative and fly-by-the-seat-of-your-pants outlook. It is a choice to prioritize you life or to live within the reigns of chaos. It is a choice to have faith and live by that faith just as it is a choice to have no spiritual compass at all.

And as I type this, I also have the choice to stay on my path and keep my eyes focused on what He has planned for me. This means I need to stop with the masks, I need to stop with the excuses, and I need to push through regardless, because I don’t know how much time I have left.

Since having this Spirit led realization, it made it crystal clear about how I truly haven’t really been following anything well. I have become lax in nearly all I do. I have lost my flame and now have only  few flickers of it remaining. Thankfully, I haven’t allowed it to go out completely as it’s much easier to fan a flame to make it larger than to start fresh.

It’s truly a great idea to write down, with date, prayers. especially when you’re asking for Him to do a work in you rather than in another, and when you’re truly sincere about it. Then, just wait. If you truly meant the request and have been following through in your actions along with drawing closer to Him by delving in His Word, it is much easier to actually *hear* what He wants us to *listen* to.

And it is currently my choice to get off this thing and catch upp on some of my reading, as I’m falling a bit behind.

Until then, Be Blessed!

~ J

❤ ❤ ❤

Book Club / Review

I have decided there isn’t as much reading in the world, with physical or virtual books, and this makes me sad. It also disheartens me the amount of books I have, both spiritual and fiction, I haven’t even read half of them.

This will be the section for my current book and the review I’ll be doing on it. My goal is 1-2 chapters a week, but it also depends upon the size of the chapters as I really want to get as much meat out of it as I can.

You are more than welcome to join with me on both the reading and the review. I plan to have a syllabus of which books I plan to read and the order in which I plan to do so.

I believe it would be wonderful for you to accompany me on this journey.

There will be a syllabus so all who would like to participate will be able to do so on their own. There will then be a time to discuss what we’ve read and absorbed, and, if applicable, along with how we can, or are currently, applying the teachings in our lives. There will also be a section where questions will be discussed.

The theme as discussed above is the beginning template for how reviews will work unless the need to be tweaked arises. I would appreciate any thoughts and constructive comments to allow for this site to improve.

I do thank you in advance, and until then, be blessed!

~ J

❤ ❤ ❤