MultipleSclerosis Rx & Dr options

MultipleSclerosis Rx & Dr options

UGH!!! My RRMS is getting progressively worse.

It’s really frustrating and even more so since it appears to have started to significantly and quickly decline once I began taking the other prescriptions for pain, anxiety, and depression (which makes no sense to me since I’m not depressed). So, I’m on Gabapentin for the pain and the constant tingling, Alprazolam for anxiety (I have a bit of agoraphobia), and Sertraline for depression.

Now, my (current) neurologist, I’m getting another opinion in November, wants an answer when I see him in a couple of weeks as to which medication I have chosen. He gave me three choices of oral medication, Aubagio, Gilenya, and Tecfidera. I read up on each of these. In fact, I spent HOURS reading, researching, and looking up testimonials and reviews from unbiased sites. But even just the “don’t take this if you have…” section tells me they won’t work.

Dr. H (not giving his full name for anonymity) has been pressing me to take the Tecfidera for a couple of years now. This particular drug prescription costs $70,000 USD a year!!!! How can I possibly justify taking a drug that costs more than most people make in a year and four times the amount I was making at the job I lost. This leads me to have to look up the injectable options, which probably won’t cost any less. This is also frustrating because I have continued to ask him for more natural remedies due to the affects of the side effects of the prescriptions.

My reason for looking for another option for a neurologist is based on my not having faith in the type of care Dr H has been giving me, or in how he keeps my records. I recently received a copy of my record for a lawyer to look into regarding appealing a decision bout receiving some benefits as I currently only have my child support and Herbalife, and it was incomplete with regard to complaints when I saw him along with medication lists. I also began to wonder some time ago why he hadn’t even suggested physical or occupational therapy once he saw I was getting worse.


In addition, when delivering the forms needed by the attorney to Dr H’s office, while it was mentioned they were needed within two weeks, it instead took 1-1/2 months for him to properly and completely fill the paperwork out, which was as a result of many phone calls and visits to try to get it all prioritized.I’m thankful the application for my handicap placard was finally completed and sent in to the RMV last week.

sleepingAnyhow, the past few months have been very trying with regard to my health. Some days I wake up with my youngest to see him off to school and am okay for the remainder of the day and can then sleep a full night. Then there’s other nights. Those nights I can’t get to sleep until the sun has come up. Then, once everyone has left for the day, my body will finally fall asleep, but only for a few hours. Then there are also those same nights where I don’t get to sleep at all until mid afternoon, sleep for a few hours, wake up again for an hour or so, and then finally sleep until I awake at a normal time.

I don’t know if the sleeping issues are as a result of Dr H upping the dose on my gabapentin from 900mg/day to now 1800mg/day, and yet I’m still in pain as well. I have been extraordinarily consistent with my workouts again…because let’s face it, I went up to Vermont with good intentions of continuing with my workouts, but instead did a single hike the entire time I was up there. Then, of course, because I had gotten out of my routine, I had become lazy and just stopped.

So morning workouts resumed a few weeks back, and with the exception of the nights I didn’t sleep, I would make up for it that next evening, which would sometimes put me at two workouts a night, knowing if I didn’t, I would get off the routine, get lost from the habit, and get back to not feeling well.

I hope that you’re having an amazing week!

Be Blessed!

~ J

❤ ❤ ❤




Back home in Vermont


I can’t believe it’s been a month already! I am so sorry for having been away for so long, but unfortunately, I was having computer and wifi issues. I am currently up in Vermont on vacation…by myself! The kids didn’t want to have to unplug while being up here, so they chose to stay home, and their father is staying with them.

This trip truly has been amazing so far. I’ve been up here for about 10 days and plan to be up here for another 8. While I do miss my kiddos, I haven’t had to deal with any symptoms since being up here, which is always a good thing. I have been able to visit with both family, and this time, more friends than the usual one or two I meet up with while visiting.

I would love to say it’s been gorgeous out every day, because we have been experiencing quite a few storms lately. Some of them just appear out of nowhere, like the one last night, whereas the one the previous night had wind gusts of up to 60mph which caused some power brown-outs and brief outages in addition to fallen limbs and trees. What was nice about both is they lasted no more than an hour or two and cooled off the weather significantly in addition to decreasing the humidity.

It’s been nice though. I’ve never sofa surfed as I have this trip, and it’s wonderful! I literally came up here with $30, some non-perishables, my Herbalife, and a full tank of gas. Being able to have the time to visit with my friends and family for longer than just a quick 30 minutes has been glorious. I’ve been able to reach within and get myself back to being closer to Him, and to do some further soul searching, in addition to improving my health, even if only temporary.

edited_IMG_20160712_090246222_HDRMy great-nephew <8 weeks


Prepared for anything…IMG_20160709_123108IMG_20160709_123152IMG_20160710_162308

ex-boyfriend, Rob, but still a great friend!IMG_20160710_192206

L – R: Niece Briana, Nephew Tommy, myself, and younger sister ShannaSnapchat-491294056949549364

Myself and My oldest niece, Ashleigh, who is also Mrs Vt International, 2015Snapchat-1385296201752309185

My brother in law, Steve. Also Ashleigh’s father and Astella & Rhoswen’s grandfather.

So this has been a fun trip. It’s nearly done, and once I’ve arrived back to Mass, I’m sure I’ll have plenty more pictures to share and upload. This truly has been such an amazing time for me. I haven’t been this relaxed in I honestly don’t remember how long. It’s been so wonderful to be able to visit with family and friends and not having to worry about whether or not I have to leave sooner rather than later because the children were bored. That’s not to say I don’t miss them, because I most certainly do, but I’ve been able to partake in more activities this time around and it has been wonderful.

Well, Since I am borrowing wifi at the moment, I should really start packing up and get moving to my next destination.

Be blessed! Thank you for being so patient in waiting for this post. ❤ ❤ ❤

To Script or Not

I try to avoid prescription chemical medications for many reasons, most importantly is because the affects of the side effects are worse for me than what the script is being used to treat for. I have many different health issues, which one may not guess to look at me, because most of them are ones that don’t always show externally.

And let’s not forget trying to remember following the detailed instructions in taking the script so as to avoid the side effects as much as possible, especially those rare side effects.

Which I happen to quite frequently fall into.

So, I eventually became my own personal advocate for my health and stopped lining the pharmaceuticals wallets with our hard-earned finances.

Since then I have researched a lot. I began making simple changes in my family’s nutrition. I had bloodwork done along with fasting. I abstained and slowly reintroduced options of things I was told I had allergens to. Oddly enough, most of my allergens were to healthy foods I loved!

So, I swapped out to organic and began the slow acclimation process.

But I also knew it was more than that. My size was out of control. Not even taking BMI into account, I was at that point teetering the line of morbid obesity. 4’11” and stuck at 145-150#. I saw a nutritionist, who let me know I was headed in the right direction, but I was lacking in nutrients.

I knew something that has worked in the past, so I immediately began saving up by using extra coupons, finding better deals, anything I saved from doing things like that, I put aside.

And I finally got it. Within 36-48 hours of beginning my program, I felt to be a completely different person… I was actually able to get out of bed and move within 4 hours of waking up!!!

Since then, I was able to lose over 35# and over 10 feet of fat from my body.

Then I began getting sick again. And any of my supplements or other natural and holistic weren’t helping out with some of the problems I was having. I was put on steroids, which caused me to gain 20# back, that I had kept off for over 3 years. I then had surgery, which kept me out of work and in bed. This caused me to gain an additional 10#. I was able to lose that and had finally gotten back down to less than 10# of where I was able to stay for the previous 3 years.

Unfortunately, the illness was brought on by a combination of things. Coworkers coming into work when they were contagious, improper sterilization/cleaning of shared equipement…having an already compromised immune system, it was not a healthy situation for me. What also came with this though was situations at work which became extremely stressful, causing me to acquire new illnesses…

I have faith and belief He will get me through this as He always provides for His children. If I don’t get what I think I should be, it only means He has something even better or greater in mind for me. This helps to alleviate some upset I may have because of expecting things to go my way, as if I’m God and He isn’t.

I know everything I go through in this life is for His glory. I only want to do the best I can to be the person He created me to be. I believe all the things which have happened to me in my life He has allowed because He knew it would help to strengthen me as well as He knew I would be able to not only learn, but to help others.

And that’s what it’s really about, right? At least this is something I need to be better at remembering. Sickness is as a result of the sin in the world. Everyone is dealing with something that no one knows nothing about. Be kind always. Try putting yourself in their shoes. Try to imagine what their life may be like.

I’ve found, usually the ones who are more watchers than doers when it comes to interactions with others, are the ones who are struggling with some deep thoughts and possibly demons. Show a caring hand by reaching out to them. See if there’s anything you can do to help, perhaps not by asking, because chances are they fear requesting help for rejection, but by listening, by watching, by being in the moments with them. See how they live.

Now, as far as the prescriptions go, I will do my best to do as I’m told, however, I will also be doing my own research and finding other more natural ways to hopefully deal with what is going on.

In the meantime, I get to begin the mental preparation of leaving the house in the morning for a couple of hours, and being around other people…I should probably not think about it so much so as to perhaps alleviate the stress and anxiety of it.

I truly hope and pray everyone had a blessed Memorial Day and realize the true meaning behind the holiday, and it’s not for the BBQ’s…

Be blessed knowing He loves and cares about you no matter what you’ve done. You just need to ask Him back into your life and for His strength to get you there.